It's been a long few months. After a recent visit to my Lyme Specialist, she's pretty sure I'm postive for Bartonella as well. The tell tale rash appeared after two months on 3 different antibiotics.
Last month she switched my medication regimen again. Blech. What a tiring mess. I have become the poster child for Lyme Disease. I'd rather be something else.
Today I went and had my PICC line placed.
The staff at the RI Vascular Institute were great. It took longer to take my history and prep my arm for the procedure. They gave me my first dose of medication today as well. All in all-it was pretty easy. My arm is sore tonight and I'm tired but that's about it.The IV nurse will be out tomorrow to change the dressing.
The medications will be twice a day for a month to start. I have a little PTSD thinking about my last round of IV meds and my 10 day hospital stay. I'm hoping it doesn't turn that way this time.
Last Sunday at church I spoke with a woman who had breast cancer. While I don't compare my illness to hers, we share a lot of the same symptoms and frustrations in just trying to get through our day.
I said to her, "How's your facade doing?" She started to laugh knowing that outwardly we look fine and even manage to do it all some days. Inwardly-we look and feel like hell. "My Facade is holding up quite well thank you."
For now-life continues. The kids are still happily homeschooling (most days), we are preparing costumes for Halloween and I chug along.
Showing posts with label medication. Show all posts
Showing posts with label medication. Show all posts
Thursday, October 27, 2011
Monday, January 5, 2009
Lyme Land, Henna Art and Fresh Eggs
So do you all like the look of the new Blog? Cute isn't it. I'm getting good at this.
Let's start with the not so pleasant stuff. This picture below is my daily regimen of medication. Every morning and every night. Welcome to Lyme Land.
But enough of the unpleasantness.
Morgan worked on Math today doing angles, parallel lines, radius and circumferences. She did great. We use the Harcourt Brace book called Math Advantage. It works well for us. Patrick worked on some Math and Biology today. It takes him a while to finish Biology as it is a ninth grade book by Holt publishers. He loves Biology as always does well with it. His Math is coming along nicely and he's finally at grade level also using the Math Advantage program.
After lunch today, Morgan pulled out one of her Christmas presents. It was this really cool Henna Art kit that I got at Barnes and Noble. She's been bugging me for days to try it.
This is what came in the box. The patterns, henna mix, instruction booklet and applicator tube.
This is the pattern she picked. One of the most complicated ones there were.
This is the mixture with the instruction booklet. It looked like stuff I scraped off my boot from the chicken coop.
So the pattern Morgan chose didn't go well. The paste was too thick, and my hands were shaking from the Lyme disease. She washed off what I did and made her own but decided it was too gloppy and washed that off too. I guess it takes lots of practice to get it just right. We'll try another day.
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